Day 2

Today  was an emotional day for me. Was it full of firsts?? or just my imagination? Did  she really chatter all day  long in a sweet soft voice, and was it really different than any other day she chatted all day long. I think so, but is it only Hope I heard, in a whisper of possibility?  And do I really count the oval she drew when I showedimage her how to draw a circle, as  a circle? Her very first?! My heart says “yes” and the tears of joy that poured from my eyes tell me it was true, it must be, it just has to be, oh yes it was, it was! And she DID walk when her stroller was offered and she hardly ever  does that. And she walked for a long time.  And the way she held her spoon and with such deliberation  put it in her mouth. Was it different, omg, was it?? It felt like it was. Am I watching a miracle or holding fools gold in my heart?

Through it all, Katie was a trooper, again! They have to be sure to tell the person who reads the EEG that all that spikes and fast heart rate stuff was when Rory, one of the researchers came in the room. And she smiled and laughed at me as I bawled my eyes out at a pink circle/oval. She let me rest for an hour while she chatted softly to  Barney Songs and giggled so softly.  Tomorrow she gets her first set of two doses.  Note to self-strawberry flavored medicine goes down better when mixed with water than chocolate milk, telling by the look on Katelin’s face 🙂

and a huge thank you to the nurse who gave Katie this beautiful quilt 🙂

image

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4 Responses to Day 2

  1. Stephen says:

    So happy for you. I believe Mom can always tell if there is a difference.

  2. Rose & Renee says:

    Wonderful either way. But you know her best, Mel. If you believe you are seeing changes, then you probably are. She amazes me, and so do you.

  3. Buddy says:

    Sending all our Love to you and Katie….Go Katie Go!

  4. Linda E. Williams RN says:

    Love the quilt; very special lady, Nurse Shirley. Our world abounds with unseen heroes.

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