Day 5

The good thing about today, no EEG, the bad thing 4 blood draws. They put a catheter in, but it failed on the last draw and it took two more sticks to get the blood they needed. My girl had some choice words for the poor nurse drawing blood, which we shall not repeat, so you all still think my girl is sweet and innocent!

They weighed Katelin and a loss of 2.5 lbs in four days, she also didn’t have a BM so evasive measures were taken, but they seem to be working WAY more effectively than usual, it appears some adjustments are in order, lol.  She did eat some at the food court, but isn’t even touching her chips. Of course, she’s in no danger of melting away, but I’ll be bringing her in for frequent weigh ins as they want to use the same scale.

I got to see the footage of the walking before and after, and given the improvement in her behavior, the increase in her walking and the fluidity and her control on the drawing combined with the decreased appetite that cannot be accounted for, for any other reason, as I have been sure to go to McDonald’s which she refused as well, and those of you who know Katelin must be opened mouth in shock, I am feeling fairly certain she is on the medication. Her verbal skills are increasing to the degree that anyone who has heard her in the last couple of days, and especially today, have understood her easily, whereas I usually have to translate.

We are ending our night rocking out to Ray Charles. Tomorrow is our last day. I’ll ask for one more weigh in and then hoping for a nice day. If it is we are zoo bound!

This entry was posted in Rett Syndrome, Trail to a Texas Trial, Uncategorized. Bookmark the permalink.

3 Responses to Day 5

  1. Rose & Renee says:

    I’d love to know what she said to the one drawing blood. I know I’d have some choice words also. Other than her appetite, sounds exciting!

  2. Linda E. Williams RN says:

    Sad pictures best forgotten. How brave you both are. God bless you on this Sunday morning. Love and hugs, Linda

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