Katie does not want to be around people today. Only mommy and only far far away from people. We did get to the Post Office, thank goodness there was a cute guy or it would’ve been ugly. Subway (lunch) was ugly and loud, even on the bus, which she typically loves. She wasn’t so weepy today as just simply pissed off. She’s barely eaten and I’m taking her in for a weight check.
Her improved hand skills are fading. I’m hand feeding almost everything or it has to be finger food. The few spoonfuls she did today had her right hand coming up.
No new words or anything new since the other day. If she’s up to coloring tomorrow it should give me a clearer idea of her coordination.
I am definitely feeling the strain and for the first time looking forward to going home. Today is the first day in a month I could use a break.
But, right now she’s quiet, snuggling with mommy, reading stories, and smiling. I hope she likes people tomorrow, I miss the company.
I would say based on these videos Katelin’s ability to self feed has almost returned to where it was before the trial. It seems to me that it took slightly longer to lose the skill than it did to gain it. This, in addition to the fairly drastic change in behavior, on one hand is disheartening, on the other, if Katelin received the NNZ-2566, would suggest to me that this medication improved the symptoms of Rett Syndrome in Katelin, and that is very heartening indeed.