10 am
I woke up at 830 after waking up at 1230 and staying that way until 5. I made coffee and toast, completely normal things… Who the hell am I kidding??? I literally thought “this is the last time I’ll make coffee without knowing.”
Ya know that saying…a watched pot never boils? Well, a watched phone doesn’t give out results, either. I welcome other parents to post their own ramblings over the day, as we all wait this day out 🙂
1pm
I think it’s cool, on Veteran’s Day, to acknowledge the Army for its involvement in the research and development of NNZ-2566-
Www.intrepid-2566.com
130pm
Oh, having just read through all of that, I realize this day has actually been 10 years in the making. Thank you Neuren for working half my child’s life to help her.
4pm
I wonder if I keep shaking my foot if it will fall off?
445 pm
I know nothing about champagne, so I hope this was a good choice….
Two things
1. I told the cashier it was for a monumental occasion I’ve been waiting for, for 19 years…she goes…divorce? Bwahaha
2. I will drink it one of two ways, kinda like Paul Revere and his two lanterns…good news a glass and toast will be involved; bad news- I’m drinking it straight out of the bottle.
Trail to a Texas Trial 
Interrupted sleep, awake on & off all night… And Emily only woke me up twice!
I doubt many of us got much sleep at all! 🙂
THE ANNOUNCEMENT IS OUT
The Neuren headline says it all
Neuren successful in Rett syndrome Phase 2 trial
Hope the champagne and the glass are both chilled.
Our thoughts are with you.
Mal, thank you so much! And thanks for the tip. I never can afford it, so I didn’t know to chill the glass 🙂
I hope ALL of you know how deeply indebted I am to you, and when she’s able I will have Katie tape a “thank you”. I know you can understand how that be “when” and no longer an “if” or “never”. It seems like so little, but Thank you from the bottom of my heart.
Results are out Mel. It is very good news. http://www.asx.com.au/asxpdf/20141112/pdf/42tng2ql8l0111.pdf
Thank you Frogga 🙂
The kindness of so many wanting me to be out if my misery from waiting is humbling. I have often told my friend Akex, who lives in Australia, I would never visit because if the three S’s (sharks, snakes, spiders) but now I would give anything to be there to hug all of you. And I am certain this is something you all have been waiting for and I hope you all make a bundle!
Mel, we both have tears of joy for you and Katie and all the rett families xx enjoy the champagne xx
I have tears of joy, too, but some of those are of gratitude. I greatly appreciate knowing so many people have been touched by my girl and she and I in return. Many blessings to all of you. It’s to you all I will be raising my glass.