The Blue Bird Circle Rett Center at Texas Children’s Neuroscience Center

A nice overall explanation of Rett syndrome, therapies available, and potential drugs (Trofinitide 🙂 ) that may lead to real treatment.

Dr. Glaze is a marvelous doctor. He was so calm, committed and excited at every little new thing Katelin could do, and I’m certain it was the same for all the girls. Seeing Trofinitide specifically mentioned and hearing how hopefully he is really gives me a boost of “it will happen” hope. I felt kind of bad for him, Katie would talk for the other researchers, but not him. He had the bad end of the stick, having to do all the exams, so she didn’t like him and he was really SO nice. Once, she even clapped her hands when he left. 😦 I think she was just so fed up by that time.

We did, however make this for him, and the team gave it to him on his birthday.IMG_4296

And, I loved what Katie got!

katelin 007

 

I admire and adore him for the work he is doing. I highly recommend this center, it’s clear who the number one priority is…our girls and boys.

Thank you Dr. Glaze!!

Advertisements
This entry was posted in NNZ-2566 trial, Rett Research, Rett Syndrome, Texas Children's Hospital, Trofinitide and tagged , , , , , , . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s