A nice overall explanation of Rett syndrome, therapies available, and potential drugs (Trofinitide 🙂 ) that may lead to real treatment.
Dr. Glaze is a marvelous doctor. He was so calm, committed and excited at every little new thing Katelin could do, and I’m certain it was the same for all the girls. Seeing Trofinitide specifically mentioned and hearing how hopefully he is really gives me a boost of “it will happen” hope. I felt kind of bad for him, Katie would talk for the other researchers, but not him. He had the bad end of the stick, having to do all the exams, so she didn’t like him and he was really SO nice. Once, she even clapped her hands when he left. 😦 I think she was just so fed up by that time.
And, I loved what Katie got!
I admire and adore him for the work he is doing. I highly recommend this center, it’s clear who the number one priority is…our girls and boys.
Thank you Dr. Glaze!!