And….the President Answers

 

image
Dear Melinda:
Thank you for writing, and for your service and sacrifice. I have heard from too many Americans whose lives have been affected by a wide range of health conditions and diseases. Whether they are common, preventable ailments or rare, life-threatening illnesses, we must do more to find cures and improve treatments for patients.
I have always been a strong supporter of medical research because of its potential to save lives, relieve suffering, and improve our quality of life. From mapping the human genome to unlocking new vaccines and cancer treatments, Federally funded research has spurred advances in science and health care that help millions of Americans every day.

Medical miracles do not happen by accident. They often grow out of painstaking and costly research, and years of trial and error. But when these investments pay off, they change our lives in ways we could never have imagined. And as a Nation, we need to keep taking bold steps toward the most promising solutions in medicine and human health.
Under the Recovery Act, we made available $10 billion in new resources to support research at the National Institutes of Health—an unprecedented amount. I also lifted the ban on Federal funding for embryonic stem cell research, which has the unique potential to help us better understand—and possibly cure—some of the most devastating diseases and conditions.
Those were big steps forward, but we had to keep going. So in 2013, I announced the next great American project in medical research: the BRAIN initiative. By investing in basic research, this initiative aims to give scientists the tools they need to get a dynamic picture of the brain in action and better understand how we think, learn, and remember. And that knowledge could transform how we treat illnesses like Parkinson’s, Alzheimer’s, post-traumatic stress disorder, and epilepsy. To learn more and see other projects we are pursuing, visit http://www.NIH.gov.
At times, our pride in discovery of innovative treatments is tempered by shortages of vital medications, including some used for the treatment of cancer. That is why in October 2011, I directed the Food and Drug Administration to do more to reduce and prevent drug shortages, protect consumers, and prevent price gouging. Since then, hundreds of drug shortages have been averted. And moving forward, we will keep working to ensure patients have access to the lifesaving medicines they need.
Thank you, again, for writing. Medical research holds promise like no other area of human endeavor, and by claiming that promise together, we can keep making progress toward a brighter future for everyone.
Sincerely,
Barack Obama

 

It doesn’t answer my hope or question, and may be a form letter, but maybe, just maybe, if the President sees paperwork or is a conference and NNZ-2566 or Trofinetide is mentioned he’ll pay just a bit more attention.

I’m interested if others get the same response, but for now I’ll appreciate I live in a country where I was able to write to my elected officials and get a response and remember to my core that such Freedom doesn’t come free. And as a friend gets ready to deploy, Fair Winds and Following Seas, may fortune keep you and your comrades safe.

Advertisements
This entry was posted in nnz 2566, Rett Syndrome, Trail to a Texas Trial, Trofinetide, white house and tagged , , , . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s