Monthly Archives: April 2016

Epic Fail (Not)

Today was an epic fail on my part. And so I will generalize this day and trials, not just Trofinetide, but just in general. I started out with a GREAT premise…Katie would LOVE a whale watch. We were on one … Continue reading

Posted in cure, Intrepid 2566, Neuren, Neuren Pharmaceuticals, NNZ-2566, TBI, Trail to a Texas Trial, Trofinetide, Uncategorized | Leave a comment

Tired to Death of Death

Today is a rough day. A young woman with Rett syndrome passed away yesterday, others are fighting for their lives. Mothers are raging against the beast, doing everything a momma bear CAN do, and still their children are suffering. And the … Continue reading

Posted in Uncategorized | 2 Comments

Will it be Luck in Spades?

Neuren has gone in to a trading halt pending (presumably) the results of the Intrepid-2566 TBI study. I can only imagine how the long term stock holders are feeling at this moment….will their hopes be realized? Those dreamed 10 years … Continue reading

Posted in Intrepid 2566, Neuren, Neuren Pharmaceuticals, TBI, Uncategorized | Tagged , , , , | Leave a comment

The Short Story and It’s Long Reaching End

 Yesterday, I was contacted by a Neuren Rep wondering if I had heard of the Pediatric Trial with NNZ (Trofinetide) and would I mind promoting it. I had an inward chuckle at that 🙂 and she sent me a blurb, … Continue reading

Posted in Intrepid 2566, NNZ-2566 trial, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Uncategorized | Tagged , , , , , , , , , , , | 1 Comment

April Wishes

April is a HUGE month. Not the least of which is the start of the Pediatric Trofinetide trial; but it is also the month the results of Intrepid 2566 are due. For those not familiar with Intrepid 2566, these results … Continue reading

Posted in Uncategorized | Tagged , , , | Leave a comment