Enough for a Baseball Team!

9! 9 sites are active and enrolling participants for the Pediatric Phase II trial of Trofinetide.

baseballThis got me thinking about baseball (because, really, everything can somehow be related to baseball).  I imagine the Rett brain is like the home team. First, their up to bat. In comes the pitch (incoming data) and bam! the brain hits it, sure to be a homerun, but then it all comes to a halt and it somehow  turns into a bunt, it doesn’t even make it to the pitcher’s mound, but the runner takes off as fast as possible, but it’s like his feet are moving in slow motion. Easy out. The whole inning is like that. 3 up, 3 down.

Next, the other team is up. In comes the pitch….a line drive to centerfield…. and the centerfielder just misses the catch. Then comes error after error as each connection that should be made is missed. The ball is dropped; the throw’s too short. And the runner rounds the bases without ever stopping…no hanging out  at first to get input from the first base coach, no back and forth in a game of pickle, no need to communicate with the third base coach about strategy. Nope, just runners going ’round and ’round. So expected there’s not even any cheering for the “home run”.

But NOW, there’s a new team on the block! And they need YOU to come out to the ballpark and cheer them on. So, if you are able, here is the current team line up….

The following sites are now active and are able to enroll participants into the study:

  • University of Alabama at Birmingham, Birmingham, AL
    • Contact: Jane Lane
    • Phone: 205-934-1130
    • Email: jlane@uab.edu
  • Greenwood Genetic Center, Greenwood, SC
    • Contact: Fran Annese
    • Phone: 864-941-8100
    • Email: fran@ggc.org
  • Boston Children’s Hospital, Boston, MA
    • Contact: Lindsay Swanson
    • Phone: 617-355-5230
    • Email: RettResearch@childrens.harvard.edu
  • Baylor College of Medicine, Houston, TX
    • Contact: Aryn Knight
    • Phone: 832-822-3751
    • Email: axknight@texaschildrens.org
  • Rush University Medical Center, Chicago, IL
    • Contact: Anna DeSonia
    • Phone: 312-563-6636
    • Email: Anna_M_DeSonia@rush.edu
  • Vanderbilt University, Nashville, TN
    • Contact: Dawn Lischke-Redmond
    • Phone: 615-875-9311
    • Email: dawn.m.lischke-redmond@vanderbilt.edu
  • UCSF Benioff Children’s Hospital Oakland, CA
    • Contact: Erica Robertson
    • Phone: 925-979-4055
    • Email: ERobertson@mail.cho.org
  • Gillette Children’s Specialty Healthcare, St. Paul, MN
    • Contact: Briana Person
    • Phone: 651-229-1770
    • Email: BrianaMPerson@gillettechildrens.com
  • Children’s Hospital Colorado, Aurora, CO
    • Contact: Nanastasia Welnick
    • Phone: 720-777-8608
    • Email: Nanastasia.Welnick@childrenscolorado.org
    • Contact: Megan Straley
    • Phone: 720-777-8008
    • Email: Megan.Straley@childrenscolorado.org.

Only two more sites left to go.

Pretty soon, I can feel it, we’ll be in the bleachers watching our girls make all the right plays, and we’ll be cheering like mad. Oh, what a game it’s going to be. Come on, play ball!

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This entry was posted in baseball, Communication, cure, hope, Neuren, Rett Research, Rett Syndrome, Trofinetide Pediatric trial, Uncategorized and tagged , , , , , . Bookmark the permalink.

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