Monthly Archives: March 2017

Happy St. Patrick’s Day…a Lucky Day for… EVERYONE!

The luck of the Irish is spreading for the Rett community. Oh, no, it’s coming from Australia this year. Neuren Pharmaceuticals Ltd- * Requests trading halt pending announcement regarding Neuren’s phase 2 clinical trial of Trofinetide in Rett Syndrome. Yes … Continue reading

Posted in Neuren Pharmaceuticals, Trofinetide, Trofinetide Pediatric trial, Uncategorized | Tagged , , , , , | 2 Comments

T-? Crunching the Numbers

  There are 31 days in March. That means at noon today, we entered the second half. Which, in turn, means there are less than 15 days until we will know the results of the Trofinetide Pediatric Trial. 360 hours. … Continue reading

Posted in boys with Rett syndrome, cure, hope, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, rettsyndrome.org, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial | Tagged , , , , , , , | Leave a comment

T-? Closing in on the 2nd Finish Line

I’m musing today, as I think about the three major trials related to Trofinetide, that the trials are like the Triple Crown. Now, I don’t know much about horse racing (though the Rett community does have its very own race horse, … Continue reading

Posted in Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Uncategorized | Tagged , , , , , | 2 Comments

T -? The Countdown Begins!!!

Today is the first day of March, otherwise known as “the month the RESULTS come out”.  Yes! The Trofinetide Pediatric Phase IIb trial results are almost here. How long can one hold their breath??? I remember exactly how I was … Continue reading

Posted in cure, Neuren Pharmaceuticals, Trofinetide, Trofinetide Pediatric trial, Uncategorized | Tagged , , , , | 3 Comments