I would not normally post anything political on this blog, however I am taking a break from this blog for a bit. The current political crisis in my country is demanding my attention. In many ways, Katie’s journey will be affected by our current administration and the overwhelming plummeting that our country is taking on a daily basis is proving too much to even think about anything else at this time.
For those of you at Neuren and others who have a vested interest in my girl, please keep her in your thoughts as next month she will undergo spinal fusion. She has a fairly high chance at some complications given the degree of her kyphosis and BMI; however her lungs are beginning to collapse and this was my red line. I will let you all know how she does come August.
I’d like you all to know that I have read the updated timeline and, while of course I wish it would move along just a bit faster, we are patiently waiting without one ounce of doubt that when Trofinetide Phase III gets here it will be a homerun. Until August then, have a great summer in the Northern Hemisphere and may the winter not be too harsh for the Southern. 😉