Monthly Archives: November 2018

When the Parent is a Punching Bag

All children act out towards parents, at some time in life, each of your children will most likely say they are unhappy with you. It’s cute when they’re four or five and they call you a “big stupid poop head.” … Continue reading

Posted in Acadia, anxiety in Rett syndrome, Communication, cure, Neuren Pharmaceuticals, Pain in Rett syndrome, Rett Syndrome, Rett syndrome Awareness, screaming in rett syndrome, Talking, Trail to a Texas Trial, Trofinetide, Uncategorized | Tagged , , , , , , , | 2 Comments

Sarizotan Trial #3 Let’s Get This Done!

Ok Folks! We’re down to the wire here. This trial has taken WAAAAY too long to get done. Only about 13 participants, worldwide, left to go. I had the pleasure of meeting Stephen Graham, Executive Director of Clinical Development for … Continue reading

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