Monthly Archives: April 2019

Rett Syndrome is Such a Trial… #1 Anavex 2-73

…and 2019 looks to change that up a bit- Rett Syndrome, so many trials! According to the most recent GP2C newsletter (GirlPower2Cure)there will be at least 7 trials this year, currently in various stages. This is SO exciting! What does … Continue reading

Posted in Anavex, Anavex 2-73, cure, Dr. Walter Kaufmann, FDA, gp2c, hope, Orpan Drug Status, Rett Research, Rett Syndrome, Rett syndrome conference 2016, Rettland Foundation, rettland.org, rettsyndrome.org, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , , , | 3 Comments

Poetry is my Pocket Watch

April is Poetry Month. As I have traveled this journey with Katelin, one of the few ways left to be ME was to write, and so I wrote. There were times I wrote on my¬† lunch break that turned into … Continue reading

Posted in national poetry month, Poetry, poetry month, Uncategorized | Tagged , , | Leave a comment