I had hoped to get this published, but no takers. However since this is Rett syndrome Awareness month and I won’t have time to update regularly, I would rather share it than let it never get read, especially after all the work Carrie Weaver put into editing. Without her, it would not have said all that needed to be said.
20 Years in Oz
By Melinda Lancaster
Seen almost exclusively in females, Rett syndrome typically represents between 6-18 months of age. Characterized by developed microcephaly, stereo-typical hand movements and a regression of skills, Rett syndrome effectively wipes away all hand-use, verbal language, and mobility, leaving children trapped within their own bodies. Many children develop seizures, breathing abnormalities, swallowing difficulties, abnormal weight loss, GI…
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