About

 

There are so many people who have helped make Katelin’s participation possible. Please follow Katelin and I as we journey into the unknown with the NNZ-2566 trial and beyond.  A cure for Rett Syndrome is within our reach and hopefully by participating in this study, Katelin can be part of that cure and the girls and boys that come after her will not have to suffer the devastating effects of this disorder. Thank you to all the many, many wonderful people who are making this possible.

For more information about Rett Syndrome go to http://www.rettsyndrome.org

 

Staff:

Melinda Lancasterm_lancaster

Katelin’s mom

 

 

 

 

brianna bBrianna B.

Sibling Consultant

Advertisements

4 Responses to About

  1. johncaitken says:

    Great news for Katelin and family with pediatric trial results
    Have a great day
    Best wishes from Warracknabeal, Australia

    • melelllan says:

      Thank you. We have def. not been on this journey alone, thanks to all there who held up such a shining light to follow.

  2. Tarek says:

    Hi Melinda, sorry if I’m bothering you but as all others I do follow your posts every day to keep that hope you drawn, is the day coming to see our daughters talking, walking and living the regular life ? 24 hours I asked God this hope to come true , why not as long I belief in miracle , is Trofinetide holding our dreams and hopes ? I don’t know really but I hope and living to belief in it, again sorry for disturbing you with my question but I see that you are the right person with huge knowledge of the promising medicine named trofinetide
    Regards to you and your angle katelin
    nmerzain@gmail.com

    Father of Nay 7 years old,

    • melelllan says:

      Oh, you are not bothering me! I don’t know the answer to your question. I hope so. I believe it will make a tremendous difference, but there are many unanswered questions- how much will it help, will girls respond differently, will a point be reached when there is no more improvement and there still are issues that need to be addressed. Only time will tell the answers, but I do not believe it is a false hope to think that Trofinetide may help a great deal. Keeping you in my thoughts as we wait for this next trial and keep my fingers crossed it is a success.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s