Category Archives: Special needs siblings


In case you are slow to know, there’s a new show out there. One that speaks for US, the families of the speechless. It’s funny! Hey, we have incredibly funny lives at times. It has great lines like….”Other people’s opinions … Continue reading

Posted in Communication, Education, Special needs siblings, Speechless, Trail to a Texas Trial | Tagged , , , , , , , | Leave a comment

Conference Post 3-It Ain’t all about the Kids.

Dr. Kaufmann (who will be getting a few posts here) gave a presentation about the behavioral issues in Rett children and adults. I’m going to do it in two parts. I can’t find the booklet today that gives the title of … Continue reading

Posted in anxiety in Rett syndrome, Dr. Walter Kaufmann, Rett syndrome conference 2016, Special needs siblings, Trail to a Texas Trial | Tagged , , , , | 1 Comment

A Rett Syndrome Mother’s Day

As special parents know, holidays are almost always a let down. Christmas usually sucks so bad it borders on travesty. Mother’s Day is a complicated day for us mothers. First of all, you can almost guarantee that whole eat in … Continue reading

Posted in cure, hope, Neuren, Neuren Pharmaceuticals,, Special needs siblings, Trail to a Texas Trial | Tagged , , , , , , , , | 4 Comments

The unseen- siblings of special needs kids

Originally posted on seizinghopedotcom:
Emily and I on a rare 1:1 lunch date The unseen-siblings of special needs kids Invisibility. That’s the superpower that siblings of special needs kids cultivate. Even if they wanted a different one like being able…

Posted in sibling sounding board, Special needs siblings | Tagged , , | 1 Comment