Category Archives: Trofinitide

All is Not Quiet on the Trofinetide Front #1 A Chess Game

It’s been very quiet in the public eye in regard to Trofinetide. We all are in a holding pattern as we wait for Phase III to begin, but BEHIND the scenes things are progressing strategically and clearly, like a chess … Continue reading

Posted in Acadia, anxiety in Rett syndrome, Ataxia, boys with Rett syndrome, breakthrough therapy, Communication, cure, FDA, Fragile X, hope, margaret brimble, Neuren Pharmaceuticals, Rett Research, Rett Syndrome,,, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Trofinetide Phase III, Trofinitide, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , | Leave a comment

The Blue Bird Circle Rett Center at Texas Children’s Neuroscience Center

A nice overall explanation of Rett syndrome, therapies available, and potential drugs (Trofinitide 🙂 ) that may lead to real treatment. Dr. Glaze is a marvelous doctor. He was so calm, committed and excited at every little new thing Katelin … Continue reading

Posted in NNZ-2566 trial, Rett Research, Rett Syndrome, Texas Children's Hospital, Trofinitide | Tagged , , , , , , | Leave a comment