Tag Archives: anxiety

You scream, I Scream (on the inside)We all just SCREAM!

See this picture here. This is our life, a roller coaster, but our kids are not screaming because they think it’s all fun and games and neither are we. I’ve seen a lot of post lately, from new parents and … Continue reading

Posted in anxiety in Rett syndrome, Communication, Rett Syndrome, screaming in rett syndrome, Trail to a Texas Trial, Uncategorized | Tagged , , , , , | 2 Comments

Though She be but Little, She is Fierce

This is a favorite quote of many Rett syndrome parents. It is often posted. Some have tattoos with it. I’m pretty sure there are T-shirts with it. Shakespeare had no idea what an impact that one little sentence would have … Continue reading

Posted in anxiety in Rett syndrome, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Trail to a Texas Trial, Trofinetide Pediatric trial | Tagged , , , , , , , , | 1 Comment