Tag Archives: fund raising

In the Spotlight!- Colleen English

Every once-in-awhile you meet someone just destined to change your world. One of those people is Colleen. In the years that I’ve known her, her great, big heart has gone from figuring out to provide gift cards to trial families … Continue reading

Posted in Anavex 2-73, IgF-1 trial, Neuren Pharmaceuticals, Newron, Rett Research, Rett Syndrome, Rett syndrome Awareness, Rettland Foundation, rettland.org, sarizotan, seizures in Rett syndrome, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , | Leave a comment

Vive la France!

Ok, Rett families, our French families need our help! They are in the running for an award of $20,000 Euros that would go toward a retreat for families in France. Last year, we all helped them win and they used … Continue reading

Posted in Association Francaise du Syndrome de Rett, French Rett Syndrome Association, Uncategorized | Tagged , , , , , , | Leave a comment

Yard Sale on a Winnie the Pooh blustery day!

This weekend we held the last yard sale before we leave. AND TALKING ABOUT LEAVE….the wind on Saturday! Katelin loves the wind, and she was snuggled up and enjoying herself ¬†and found it funny when the wind knocked something over. … Continue reading

Posted in Rett Syndrome, Uncategorized | Tagged , , , , , , , , | 2 Comments