Tag Archives: Natural History Study

Let’s Break it Down-5 (Neuren Aims, Shoots, Scores! Slam Dunk!)

  Yes, we have finally reached the last part of the Pediatric Trial Results. Hooray. It was quite a challenge for me and hopefully I made it understandable for everyone. I want to thank those people who explained things to me … Continue reading

Posted in cure, hope, margaret brimble, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Uncategorized | Tagged , , , , , , | 2 Comments

…And, It’s a Wrap!

Neuren announced on Monday that the last pediatric trial participant had completed the Trofinetide trial and that results are due out the second half of March. See their announcement HERE! I want to thank all the parents and children who … Continue reading

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Go Team Rett!!

Tomorrow, eight amazing people are running the Boston Marathon for our girls and boys. I had the real pleasure of getting to meet some of them yesterday. A small get together at the Lir, in Boston, provided a nice environment to … Continue reading

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