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Tag Archives: Rady Children’s Hospital
One Girl with Two Backs of Steel
On July 31, I did the one thing I’ve feared for 10 years. I let my child go into surgery for kyphosis. It’s hard to describe those 10 years of thoughts-the being told surgery was inevitable, being told … Continue reading
Posted in bone deformity in Rett syndrome, kyphosis, Pain in Rett syndrome, Radiology in Rett syndrome, Rett syndrome Awareness, scoliosis, skeleton, Trail to a Texas Trial, Trofinetide
Tagged bone deformity in Rett syndrome, complications of spinal surgery in Rett syndrome, kyphosis, Rady Children's Hospital, spinal surgery
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Trail to a Texas Trial 