Tag Archives: Rett Syndrome Research Trust

Rett Syndrome is Such a Trial… #2 Ketamine

Many parents can attest to the fact that after a procedure requiring anesthesia our children have a decrease in Rett related symptoms. For Katelin, this was a drastic decrease in behavioral issues. My other children would often say… Can we … Continue reading

Posted in Breathing issues in Rett syndrome, FDA, ketamine, Rett Research, Rett Syndrome, Rettland Foundation, rettland.org, RSRT, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , , | 2 Comments

In the Spotlight!- Colleen English

Every once-in-awhile you meet someone just destined to change your world. One of those people is Colleen. In the years that I’ve known her, her great, big heart has gone from figuring out to provide gift cards to trial families … Continue reading

Posted in Anavex 2-73, IgF-1 trial, Neuren Pharmaceuticals, Newron, Rett Research, Rett Syndrome, Rett syndrome Awareness, Rettland Foundation, rettland.org, sarizotan, seizures in Rett syndrome, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , | Leave a comment

International Women’s Day

I’ve had some great female role models over the years and I have a pretty long memory. The first woman I remember, even before my own grandparents, was Grandma Watson, we lived upstairs from her when I was just a … Continue reading

Posted in chan zuckerberg initiative, huda zoghbi, Huda Zoghbi, International Women's Day, margaret brimble, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettland.org, rettsyndrome.org, RSRT, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , , , , , , , | Leave a comment

Winding Down

Rett syndrome Awareness #30 October is winding down and we’ve almost made it through the month. As I sit here and write this, I know there are families who didn’t make it through, they lost their children in the days … Continue reading

Posted in boys with Rett syndrome, cure, fund-raising for rett syndrome, Huda Zoghbi, margaret brimble, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettland.org, rettsyndrome.org, RSRT, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

The Short Story and It’s Long Reaching End

 Yesterday, I was contacted by a Neuren Rep wondering if I had heard of the Pediatric Trial with NNZ (Trofinetide) and would I mind promoting it. I had an inward chuckle at that 🙂 and she sent me a blurb, … Continue reading

Posted in Intrepid 2566, NNZ-2566 trial, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Uncategorized | Tagged , , , , , , , , , , , | 1 Comment