Monthly Archives: December 2017

Here’s to a New Year and a New Hope

Posted on December 27, 2017 by melelllan

This will be my last post of the year!   I’m feeling particularly retrospective at this time, this year. Facebook has reminded me on an almost daily basis since November of Katelin’s participation in the Adult trial (Phase II of … Continue reading →

Posted in boys with Rett syndrome, Communication, cure, FDA, hope, MecP2 duplication, Neuren Pharmaceuticals, NNZ-2566 trial, Rett Research, Rett Syndrome, rettsyndrome.org, Talking, Texas Children's Hospital, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Trofinetide Phase III | Tagged , , , , , , , , , , | 2 Comments

Thank you, Neuren

Posted on December 25, 2017 by melelllan

Dear Neuren researchers, administrative personnel and stock holders and everyone involved in the journey we’ve been on for four+ years now. This post is just for you. Today, my Christmas present was watching Katelin’s joy at holding her very own … Continue reading →

Posted in Neuren Pharmaceuticals, Uncategorized | Tagged | Leave a comment

Christmas Wonderland

Posted on December 21, 2017 by melelllan

Every year for the past 18 years I’ve asked Santa for a cure for Rett syndrome. (Katie was 6 when the gene testing became available and we knew with absolute certainty she had Rett syndrome). Every year except this year. … Continue reading →

Posted in Communication, hope, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Talking, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , | 1 Comment