Monthly Archives: November 2020

A Time to be Thankful

Posted on November 30, 2020 by melelllan

This post is a little late, but Rett syndrome doesn’t work on my schedule 😉 Each Thanksgiving, like the rest of the US, I reflect upon all the many, many things I have reason to be grateful and thankful for. … Continue reading →

Posted in Acadia, Death in Rett syndrome, margaret brimble, Neuren Pharmaceuticals, Rett Syndrome, the sea, Trail to a Texas Trial, Trofinetide, Trofinetide Phase III | Tagged , , , , , , | 2 Comments

In The Spotlight- Dr. Helen Leonard and Telethon Kids Institute: Part I

Posted on November 16, 2020 by melelllan

Dr. Helen Leonard is a world renown specialist in Rett syndrome and related disorders. Her database of Rett syndrome and its mutations is one of, if not the, most comprehensive in the world.
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Posted in Australian Rett syndrome Association, Dr. Helen Leonard, Dr. Jenny Downs, InterRett, Rett Research, Rett Syndrome, Rett syndrome Awareness, Telethon for Kids, Trail to a Texas Trial | Tagged , , , | Leave a comment