Monthly Archives: April 2015

Our French Cast (aka French Rett Families) Need Us!

Can’t wait to see this premier!! Thanks to the French Rett Syndrome Association for the best preview poster ever! The French Rett Syndrome Association needs our help. They have an awesome proposal and are in the running to receive a hefty donation, … Continue reading

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Newsworthy News!

Today, like many other Rett parents, I got an e-mail from Neuren in regards to their Chairman’s Address to Stockholders. It was chock full of hopeful expectations. Of particular note: “Finally, I would like to make some remarks in relation … Continue reading

Posted in Ann Romney Center for Neurological Diseases, Brigham and Women's, cure, Neuren Pharmaceuticals, NNZ-2566, Rett Research, Rett Syndrome,, TBI, Trofinetide | Tagged , , , , , , , , , , | 1 Comment

Go Team Rett!!

Tomorrow, eight amazing people are running the Boston Marathon for our girls and boys. I had the real pleasure of getting to meet some of them yesterday. A small get together at the Lir, in Boston, provided a nice environment to … Continue reading

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Behavior IS Communication!

Originally posted on a diary of a mom:
I am in an unfamiliar place. I do not speak the language, nor know the local customs. I do not feel well. I approach a woman nearby. “Excuse me, please,” I say. “I…

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