Monthly Archives: July 2015

A New Avenue…

for funding! From “On June 11, 2015, The Senate Appropriations Committee approved its 2016 fiscal year Defense Appropriations bill to include 50 medical conditions, including Rett syndrome, eligible to compete for funding. This news demonstrates the Committee’s dedication to … Continue reading

Posted in Congress, cure, hope, Intrepid 2566, Neuren Pharmaceuticals, NNZ-2566 trial, Peer Reviewed Medical Research Program,, Trofinetide | Tagged , , | Leave a comment

My Happiest Photo

Amazon Prime  is having a photo contest today, “your happiest moment”. You would think that of all the hundreds, maybe thousands of photos I have of my children and my life- my Navy days, my beloved grandparents, the day I … Continue reading

Posted in cure, hope, NNZ-2566 trial, Rett Syndrome, Trail to a Texas Trial, Uncategorized | Tagged , , , , , | 2 Comments

Independence Day

  As I reflect on what Independence Day means to me personally, as an American and a veteran, I can’t help but think what it would mean to Katie and other children with Rett syndrome, their Independence Day. From the Declaration … Continue reading

Posted in cure, hope, Trail to a Texas Trial | Tagged , , , , , | 1 Comment