Category Archives: Raising a Hand

ASCEND 2022!

Posted on May 11, 2022 by melelllan

After a VERY long hiatus, the annual/biannual Rett syndrome Family Conference came back with a BANG! The backdrop being the incredible, but entirely too large, Gaylord Resort, Nashville. Thank you to IRSF for putting together such a massive and comprehensive … Continue reading →

Posted in Acadia, Anavex, Ascend Rett syndrome conference 2022, boys with Rett syndrome, clinicaltrials.gov, Communication, David Clements, Dr. Helen Leonard, Dr. Walter Kaufmann, FDA, fund-raising for rett syndrome, hope, Huda Zoghbi, Kevin Black, LAVENDER TRIAL, Raising a Hand, Rett Research, rettsyndrome.org, Telethon for Kids, Trail to a Texas Trial, Trofinetide, Trofinetide Phase III, Uncategorized | Tagged , , , , , , , , , , , , , , , , , | Leave a comment

Rett syndrome Awareness Month #4 Helping Hands/Fundraisers Galore

Posted on October 4, 2021 by melelllan

One of the mainstays of this month is fundraising! From small pumpkin painting ones and the ever popular purple fingers and toes nail polish ones, to jewelry and other small businesses holding parties with a portion going to a charity … Continue reading →

Posted in David Clements, fund-raising for rett syndrome, gp2c, Kevin Black, Raising a Hand, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettsyndrome.org, Trail to a Texas Trial | Tagged , , , , , , | Leave a comment

Conference Post 2- Raise Your Hand

Posted on July 16, 2016 by melelllan

I find it hard to decide what order to do these posts in; what struck me, may not be what struck others. However, I believe I can say we were all struck by Kevin Black. Kevin’s daughter, Cortney, passed away … Continue reading →

Posted in David Clements, Kevin Black, Raising a Hand, Rett syndrome conference 2016, Uncategorized | Tagged , , , , , , , , , | Leave a comment