Category Archives: Poetry

A Crystal of Happiness and Hope

There is a poem I love. It serves to remind me that we are all entitled to the “Pursuit of Happiness” but also that you must learn to be content with any pieces you find because, in truth, no one … Continue reading

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Poetry is my Pocket Watch

April is Poetry Month. As I have traveled this journey with Katelin, one of the few ways left to be ME was to write, and so I wrote. There were times I wrote on my¬† lunch break that turned into … Continue reading

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My Wish to the Stars

Our little community has lost at least 5 girls and one mother to Rett syndrome and FoxG1 since the start of the new year. Facebook is a double edged sword-you watch these children grow, rejoice in new skills or coming … Continue reading

Posted in Death in Rett syndrome, FoxG1, Poetry, Rett Syndrome, Trail to a Texas Trial, Uncategorized | Leave a comment

Poetry Month: Pain inspired

Many, many years ago, while taking a course in college they gave us this book of poems, rather we BOUGHT this book of poems. And it is my favorite. I still read it from time to time. One of my … Continue reading

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