Category Archives: Neuren

Daybue Trail: Day 16-20

Posted on July 13, 2023 by melelllan

Well, what a day. About two days ago, Katelin completely stopped eating, well, according to her day program she was eating all of her meal there, which I find a bit suspicious since she’s eaten nothing at home. However, originally … Continue reading →

Posted in Acadia, Daybue, Neuren, Neuren Pharmaceuticals | Tagged , , , , | Leave a comment

The Day the Flowers Bloomed in Oz

Posted on March 20, 2023 by melelllan

Not many know this, but I am a children’s author (ok, it’s only two books, but it counts!) and I’m very proud of that. I am also a published poet and my greatest honor was being asked to write a … Continue reading →

Posted in Acadia, Dame Margaret Brimble, FDA, hope, Neuren, Rett Syndrome, Trail to a Texas Trial | Tagged , , | 1 Comment

It’s the Home Stretch!

Posted on July 18, 2022 by melelllan

ACADIA has announced the submission of Trofinetide’s application to the FDA! The words we have been waiting for have finally been written. It’s a couple of weeks later than our hearts were shooting for, but better late and the best … Continue reading →

Posted in Acadia, Daffodil trial, FDA, LAVENDER TRIAL, Neuren, NNZ-2566 trial, orphan drug designation, Rett Research, Rett Syndrome, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Trofinetide Phase III, Uncategorized | 2 Comments

It’s a wrap!

Posted on November 12, 2021 by melelllan

Neuren announces the completion of the Phase III Trofinetide study (Lavender). We are now on a countdown to results. You can read about it- here I want to thank everyone who participated in any way, for any amount of time … Continue reading →

Posted in Acadia, LAVENDER TRIAL, Neuren, Trail to a Texas Trial, Trofinetide | Leave a comment

A Challenge Accepted! ;)

Posted on November 23, 2019 by melelllan

It hasn’t happened before. I was given a MISSION, if I chose to accept it, to explain some new developments in regards to Sarizotan (Newron) and Anavex 2-73 (Anavex) receiving FDA Rare Pediatric Disease Designation: “Mel Lancaster have you posted … Continue reading →

Posted in Acadia, Anavex, Anavex 2-73, FDA, Neuren, Neuren Pharmaceuticals, Newron, Orpan Drug Status, sarizotan, Trail to a Texas Trial, Trofinetide | Tagged , , , , , , , | Leave a comment

Hot off the Presses- The Horses are Outta the Gate!

Posted on October 31, 2019 by melelllan

Well yesterday’s post WAS going to be the last one this month but then I got an email from Acadia- “Hot off the Presses” it said and then this announcement- ACADIA Pharmaceuticals Initiates Phase 3 Pivotal Study of Trofinetide in … Continue reading →

Posted in Acadia, Dame Margaret Brimble, hand clasping in Rett syndrome, margaret brimble, Neuren, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettsyndrome.org, Trail to a Texas Trial, Trofinetide Phase III, Uncategorized | Leave a comment

A Day with Acadia- Part 1: Awareness

Posted on October 30, 2019 by melelllan

This is my last post of Rett syndrome Awareness month. I had hoped to do more, but Rett syndrome made sure a good amount of awareness was happening right at home, but this was going to be the last either … Continue reading →

Posted in Acadia, Anavex, Anavex 2-73, Communication, Dame Margaret Brimble, fund-raising for rett syndrome, gp2c, hope, ketamine, kyphosis, Neuren, Neuren Pharmaceuticals, Newron, NNZ-2566, NNZ-2566 trial, Remarkable Rett-a podcast series, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettsyndrome.org, RSRT, sarizotan, service dog, Talking, Trail to a Texas Trial, Trofinetide, Trofinetide Phase III | Leave a comment

A Little Trip, A LOT of Hope!

Posted on October 2, 2018 by melelllan

A few weeks ago, Katelin and I were invited to go to Acadia! On a whim, I googled “Acadia” to see what might popup. First up, beautiful Acadia National Park. Definitely would like to go there! Actually, I can’t believe … Continue reading →

Posted in Acadia, cure, FDA, fund-raising for rett syndrome, hope, Neuren, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettland.org, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Trofinetide Phase III, Uncategorized | Tagged , , , , , , , , , , , , | 3 Comments

Neuren Gets the Green Light!

Posted on October 13, 2017 by melelllan

Well, I was NOT one of the first to get to social media today with the fantabulous news that Neuren has got the go ahead to do a Phase III pivotal trial with Trofinetide. I apologize, it was a day … Continue reading →

Posted in cure, FDA, hope, margaret brimble, Neuren, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettsyndrome.org, Trail to a Texas Trial, Trofinetide, Trofinetide Phase III, Uncategorized | Tagged , , , , , , , | 4 Comments

Enough for a Baseball Team!

Posted on July 10, 2016 by melelllan

9! 9 sites are active and enrolling participants for the Pediatric Phase II trial of Trofinetide. This got me thinking about baseball (because, really, everything can somehow be related to baseball).  I imagine the Rett brain is like the home team. … Continue reading →

Posted in baseball, Communication, cure, hope, Neuren, Rett Research, Rett Syndrome, Trofinetide Pediatric trial, Uncategorized | Tagged , , , , , | Leave a comment