Category Archives: Telethon for Kids

ASCEND 2022!

Posted on May 11, 2022 by melelllan

After a VERY long hiatus, the annual/biannual Rett syndrome Family Conference came back with a BANG! The backdrop being the incredible, but entirely too large, Gaylord Resort, Nashville. Thank you to IRSF for putting together such a massive and comprehensive … Continue reading →

Posted in Acadia, Anavex, Ascend Rett syndrome conference 2022, boys with Rett syndrome, clinicaltrials.gov, Communication, David Clements, Dr. Helen Leonard, Dr. Walter Kaufmann, FDA, fund-raising for rett syndrome, hope, Huda Zoghbi, Kevin Black, LAVENDER TRIAL, Raising a Hand, Rett Research, rettsyndrome.org, Telethon for Kids, Trail to a Texas Trial, Trofinetide, Trofinetide Phase III, Uncategorized | Tagged , , , , , , , , , , , , , , , , , | Leave a comment

In The Spotlight- Dr. Helen Leonard and Telethon Kids Institute: Part I

Posted on November 16, 2020 by melelllan

Dr. Helen Leonard is a world renown specialist in Rett syndrome and related disorders. Her database of Rett syndrome and its mutations is one of, if not the, most comprehensive in the world.
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Posted in Australian Rett syndrome Association, Dr. Helen Leonard, Dr. Jenny Downs, InterRett, Rett Research, Rett Syndrome, Rett syndrome Awareness, Telethon for Kids, Trail to a Texas Trial | Tagged , , , | Leave a comment