Monthly Archives: March 2024

Rett syndrome’s Sophie’s Choice

Posted on March 18, 2024 by melelllan

A personal blog needs to be honest. Over the years I have been the best mother for Katelin. The painful truth is by doing that I failed to be the best mother for my other children. This was aggravated by … Continue reading →

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Daybue, A Year in Review

Posted on March 14, 2024 by melelllan

I’m sorry I’m 3 days late. I should have had this post to GO! But blog writer fail there. March 10, 2023, the day that ended the “no treatment” era of Rett syndrome. It’s largely true that the first couple … Continue reading →

Posted in Acadia, Acadia Connect, Dame Margaret Brimble, Daybue, FDA, Neuren Pharmaceuticals, Trail to a Texas Trial, Uncategorized | Leave a comment