Monthly Archives: September 2018

Sarizotan Trial #2 A Bit of Background

Posted on September 30, 2018 by melelllan

So, I was going to talk about how Sarizotan is supposed to work to help with daytime apnea this week, but I thought I’d give a bit of background on it instead. 🙂 Back in 2002-2003, Sarizotan was used in … Continue reading →

Posted in anxiety in Rett syndrome, Breathing issues in Rett syndrome, Newron, Orpan Drug Status, orphan drug designation, Rett Research, Rett Syndrome, rettland.org, sarizotan, screaming in rett syndrome, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

The Sarizotan Trial #1: Breathing-It’s Own Sort of Agony

Posted on September 20, 2018 by melelllan

We all know how much we wait for breathing- when our child has just been born, the seconds are eternities, agony, as we wait for that first cry. We all know the fear of that first night they sleep through; … Continue reading →

Posted in Breathing issues in Rett syndrome, Newron, Rett Research, Rett Syndrome, rettsyndrome.org, sarizotan, Trail to a Texas Trial, Uncategorized | Tagged , , , , , , , , , , | Leave a comment