Category Archives: the sea

A Time to be Thankful

Posted on November 30, 2020 by melelllan

This post is a little late, but Rett syndrome doesn’t work on my schedule 😉 Each Thanksgiving, like the rest of the US, I reflect upon all the many, many things I have reason to be grateful and thankful for. … Continue reading →

Posted in Acadia, Death in Rett syndrome, margaret brimble, Neuren Pharmaceuticals, Rett Syndrome, the sea, Trail to a Texas Trial, Trofinetide, Trofinetide Phase III | Tagged , , , , , , | 2 Comments

Awareness Through New Eyes

Posted on October 16, 2016 by melelllan

We are half-way through Rett syndrome Awareness month. So far, it’s sucked; not only for the Rett syndrome community, but I know for the FoxG1, as well. I also know when we speak of “Awareness” it’s usually in the context … Continue reading →

Posted in cure, hope, Neuren Pharmaceuticals, Rett Syndrome, the sea, Trail to a Texas Trial, Trofinetide | Tagged , , , , , , , | Leave a comment