Category Archives: Talking

Let’s Break it Down-4

Well! If the last section was a stormy sea of up and down graphs and whirlpools of numbers, I think we’re in for some smoother sailing now! In the last post, three of the five measurements used in this trial … Continue reading

Posted in anxiety in Rett syndrome, Communication, cure, Dr. Walter Kaufmann, hand clasping in Rett syndrome, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Talking, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial | Tagged , , , , , | Leave a comment

Conference Post 4-Behavioral Issues…What? Why? and What’s being done.

Dr. Kaufmann’s presentation,”Behavior Issues and Management,” was  a must go to for me. In my previous post, I concentrated on how behavioral issues affect the caregivers and family. Now, I’d like to talk about the key points he made in … Continue reading

Posted in anxiety in Rett syndrome, Communication, Dr. Walter Kaufmann, Education, Rett syndrome conference 2016, Talking, Trail to a Texas Trial | Tagged , , , , , , | 2 Comments

Tick Tock, Hurry up Clock!

Katie’s favorite author, alas, is not me; it’s Dr. Seuss. So, in the spirit of Dr. Seuss…. Tick Tock, hurry up clock. There is a place known as the Land of Rett and in the middle of town, there’s a … Continue reading

Posted in nnz 2566, Rett Syndrome, Talking, Trail to a Texas Trial, Trofinetide | Tagged , , , , , , , | 4 Comments

Soon, Just a Phone Call Away

How simple a thing a phone call seems. Katie’s sister sends her videos on the phone for her to watch, and Katelin listens when her sister calls, but not once have they had a conversation, except when Katie was one … Continue reading

Posted in Communication, Neuren, nnz 2566, Phone, Rett Syndrome, Talking, Trail to a Texas Trial | Tagged , , , , , , | Leave a comment