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Category Archives: rettland.org
…And Slam Dunk Pulls Ahead of the Pack to Win by a Mile!!!
It wasn’t even a photo finish! Neuren’s trial was a double-blind, randomized, placebo controlled study that tested three doses of trofinetide compared with placebo in 82 subjects. The highest dose of trofinetide achieved statistically significant clinical benefit compared with placebo … Continue reading
T-?Minutes: Musing 3-Down to the Wire
Well, we’re down to the wire now. This race of results is coming to an end. What a wild ride the last few days have been for the Rett community. Time to stand up and peer down the final stretch. … Continue reading
Newsworthy News!
Today, like many other Rett parents, I got an e-mail from Neuren in regards to their Chairman’s Address to Stockholders. It was chock full of hopeful expectations. Of particular note: “Finally, I would like to make some remarks in relation … Continue reading
Posted in Ann Romney Center for Neurological Diseases, Brigham and Women's, cure, Neuren Pharmaceuticals, NNZ-2566, Rett Research, Rett Syndrome, rettland.org, TBI, Trofinetide
Tagged 50 Million Faces Campaign, Advocacy, Chairman's Address to Stockholders, FDA, MS, Neuren Pharmaceuticals, NNZ-2591, Parkinson's, Rett syndrome, Rett syndrome clinical trials, Trofinetide
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Onward and Upward with Little Girl Steps!
From Rettland.org Yesterday Rettsyndrome.org held a webinar with Steve Kaminsky on the important topic of participating in clinical trials. If you missed it here is a link to the audio. We will all move toward a cure faster when we … Continue reading
