- Follow Trail To A Texas Trial on WordPress.com
-
Recent Posts
Recent Comments
melelllan on You scream, I Scream (on the i… Rose and Renée on You scream, I Scream (on the i… Rose and Renée on Mother’s Day in Oz melelllan on April is Poetry Month-Katelin… Rose and Renée on Poetry Month: Pain inspir… Archives
- August 2017
- July 2017
- May 2017
- April 2017
- March 2017
- February 2017
- January 2017
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- January 2016
- December 2015
- November 2015
- October 2015
- September 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
- December 2014
- November 2014
- October 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
Categories
- acceptance
- animals
- Ann Romney Center for Neurological Diseases
- anxiety in Rett syndrome
- Apps
- Army of us
- Association Francaise du Syndrome de Rett
- baseball
- Boston Marathon
- boys with Rett syndrome
- breakthrough therapy
- Brigham and Women's
- chan zuckerberg initiative
- chan zuckerberg initiative, huda zoghbi
- Communication
- Congress
- cure
- David Clements
- Dr. Walter Kaufmann
- Education
- FDA
- Fragile X
- French Rett Syndrome Association
- fund-raising for rett syndrome
- grief
- hand clasping in Rett syndrome
- hope
- Huda Zoghbi
- Human body
- Intrepid 2566
- Kevin Black
- Klinefelter's syndrome
- margaret brimble
- MecP2 duplication
- Mother's Day
- Music
- national poetry month
- Neuren
- Neuren Pharmaceuticals
- Newron
- nnz 2566
- NNZ-2566
- NNZ-2566 trial
- Orpan Drug Status
- Peer Reviewed Medical Research Program
- Phone
- Poetry
- poetry month
- Puberty
- Raising a Hand
- Rett Research
- Rett Syndrome
- Rett syndrome conference 2016
- Rett syndrome Conference 2018
- rett uk
- rettland.org
- rettsyndrome.org
- sarizotan
- screaming in rett syndrome
- sibling sounding board
- skeleton
- Special needs Mother's Day
- Special needs siblings
- Speechless
- Talking
- TBI
- Texas Children's Hospital
- the sea
- Trail to a Texas Trial
- Trofinetide
- Trofinetide Pediatric trial
- Trofinitide
- ucla statistics dept.
- Uncategorized
- white house
- Wizard of Oz
Meta
Category Archives: rettland.org
…And Slam Dunk Pulls Ahead of the Pack to Win by a Mile!!!
It wasn’t even a photo finish! Neuren’s trial was a double-blind, randomized, placebo controlled study that tested three doses of trofinetide compared with placebo in 82 subjects. The highest dose of trofinetide achieved statistically significant clinical benefit compared with placebo … Continue reading
T-?Minutes: Musing 3-Down to the Wire
Well, we’re down to the wire now. This race of results is coming to an end. What a wild ride the last few days have been for the Rett community. Time to stand up and peer down the final stretch. … Continue reading
Newsworthy News!
Today, like many other Rett parents, I got an e-mail from Neuren in regards to their Chairman’s Address to Stockholders. It was chock full of hopeful expectations. Of particular note: “Finally, I would like to make some remarks in relation … Continue reading
Posted in Ann Romney Center for Neurological Diseases, Brigham and Women's, cure, Neuren Pharmaceuticals, NNZ-2566, Rett Research, Rett Syndrome, rettland.org, TBI, Trofinetide
Tagged 50 Million Faces Campaign, Advocacy, Chairman's Address to Stockholders, FDA, MS, Neuren Pharmaceuticals, NNZ-2591, Parkinson's, Rett syndrome, Rett syndrome clinical trials, Trofinetide
1 Comment
Onward and Upward with Little Girl Steps!
From Rettland.org Yesterday Rettsyndrome.org held a webinar with Steve Kaminsky on the important topic of participating in clinical trials. If you missed it here is a link to the audio. We will all move toward a cure faster when we … Continue reading
