Tag Archives: Bill Keller

A Day in San Diego :)

Posted on May 19, 2023 by melelllan

No clever title this time 😉 Just a day, but not a day like any other day and we made the most of it. First up was a visit to the Rett Clinic to see Dr. Richard Haas. Twenty-eight years … Continue reading →

Posted in Acadia, Acadia Connect, Daybue, Uncategorized | Tagged , , , , , | 1 Comment

Acadia Presents Daybue at the American Academy of Neurology Annual Meeting!

Posted on April 24, 2023 by melelllan

This is a big, Big, BIG deal! From Acadia’s announcement: Acadia Pharmaceuticals to Present DAYBUEâ„¢ (trofinetide) Clinical Data and Rett Syndrome Real World Evidence at the 2023 American Academy of Neurology (AAN) Annual Meeting SAN DIEGO–(BUSINESS WIRE)– Acadia Pharmaceuticals Inc. … Continue reading →

Posted in Acadia, Daybue | Tagged , , , | Leave a comment

A Time to be Thankful

Posted on November 30, 2020 by melelllan

This post is a little late, but Rett syndrome doesn’t work on my schedule 😉 Each Thanksgiving, like the rest of the US, I reflect upon all the many, many things I have reason to be grateful and thankful for. … Continue reading →

Posted in Acadia, Death in Rett syndrome, margaret brimble, Neuren Pharmaceuticals, Rett Syndrome, the sea, Trail to a Texas Trial, Trofinetide, Trofinetide Phase III | Tagged , , , , , , | 2 Comments

ACADIA Talks Trofinetide and Covid-19: An Interview with Dr. Jim Youakim

Posted on May 7, 2020 by melelllan

Recently, I was given the incredible opportunity to interview Dr. Jim Youakim, Vice President of Research and Development. This was a bit out of my wheelhouse, but he and Bill Keller, Executive Director of Patient Advocacy, were very gracious in … Continue reading →

Posted in Acadia, clinicaltrials.gov, hope, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, Rett syndrome Awareness, rettsyndrome.org, Trail to a Texas Trial, Trofinetide Phase III | Tagged , , , , , | Leave a comment

An Update on Trofinetide Coming Soon to a Blog Near You!

Posted on April 13, 2020 by melelllan

This past weekend, I had the great honor of being chosen to interview  Dr. Jim Youakim. Dr. Youakim heads up the Trofinetide trial from Princeton. I thought I’d give you a preview of his qualifications and some of his thoughts … Continue reading →

Posted in Acadia, Neuren Pharmaceuticals, Rett Research, Rett Syndrome, rettsyndrome.org, Trail to a Texas Trial | Tagged , , , , , | 1 Comment