Boy, does this cut to the quick. Katie’s sister has sacrificed so much. I once had to leave her at the hospital ER,at 15 because there was noone to watch Katie. She had to go through bloodwork and a cat-scan without me. I will never forget the agony of that in my soul. Every word in this article is a dagger to my heart because that’s how it is, and it is the ultimate rotten thing about trying to be a family when there’s a child with special needs. No matter what you do, there just isn’t enough of you to do enough for all. I miss memories I never had a chance of making with my daughter and son. I can only hope they forgive me.
Emily and I on a rare 1:1 lunch date
Invisibility. That’s the superpower that siblings of special needs kids cultivate. Even if they wanted a different one like being able to fly they would be stuck with invisible. It’s not a choice. None of us got a choice.
It’s not that I don’t actually see my other children. And it’s not that I don’t try. It’s just that no matter how much effort and attention I give them Haley, by virtue of her diagnosis, needs more. We all sacrifice things for her. Whether it’s a family vacation because the medical bills are too much, or a trip to an amusement park because Haley can’t do the rides, or not participating in an after school activity because Haley has a Dr appointment. But one of the things that we don’t really acknowledge is sacrificed is…
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