Tag Archives: Hotcopper

Daybue Trail: Six Weeks in-Circles and Circling the Wagons

Posted on August 6, 2023 by melelllan

For the first time in about 4 weeks, I can see the trail laying ahead. It’s been a challenge, not unlike the pioneers that came out west in its own way. I love our community; we are each contributing to … Continue reading →

Posted in Acadia, Daybue | Tagged , , , | Leave a comment

All is Not Quiet on the Trofinetide Front #2; A Balancing Act

Posted on January 8, 2019 by melelllan

* Warning* Looooong post! If you aren’t interested in financial aspects and just want an update on logistics that have affected the timeline, skip to the second half- there’s also a link to a new update from Acadia, the pharmaceutical … Continue reading →

Posted in Acadia, cure, FDA, Neuren Pharmaceuticals, Orpan Drug Status, orphan drug designation, Rett Research, Rett Syndrome, rettland.org, rettsyndrome.org, TBI, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Trofinetide Phase III | Tagged , , , , , , , , , , , , , , , , , , , | 7 Comments