Tag Archives: Australia

All is Not Quiet on the Trofinetide Front #2; A Balancing Act

Posted on January 8, 2019 by melelllan

* Warning* Looooong post! If you aren’t interested in financial aspects and just want an update on logistics that have affected the timeline, skip to the second half- there’s also a link to a new update from Acadia, the pharmaceutical … Continue reading →

Posted in Acadia, cure, FDA, Neuren Pharmaceuticals, Orpan Drug Status, orphan drug designation, Rett Research, Rett Syndrome, rettland.org, rettsyndrome.org, TBI, Trail to a Texas Trial, Trofinetide, Trofinetide Pediatric trial, Trofinetide Phase III | Tagged , , , , , , , , , , , , , , , , , , , | 7 Comments

Brand New Day

Posted on November 12, 2014 by melelllan

Having less than 24 hours to process the events of yesterday, I must say I feel like I am dreaming. Like there is this energy inside me that just doesn’t know where to go or what to do, like I … Continue reading →

Posted in Uncategorized | Tagged , , , , , , , , , | 6 Comments